Well hello @Erica and everyone elsewhere on this thread . I thought I would start a new thread and so it’s easier to update on my health. I couldn’t see how to just update without it getting lost among all the important but different issues . I have been quiet but reading some of the contacts . I have been helped to read what others also have struggled with . I know I am not alone.
Well in between starting my treatment in January 2022 and February , a war has started … it puts things into perspective - particularly when we hear and read about the impact of those caught up in it which have a cancer diagnosis or were in the middle of treatment . I don’t know how I would cope , I can hardly walk at times on my carpet never mind negotiating a broken bridge in icy conditions.
I have been praying for peace and restoration both in Ukraine and for the war that has been (note past tense ……!!!) in my own body.
This week I start my 4th cycle . I had a telephone review yesterday and my cells ‘are behaving themselves’ . The team are ‘pleased with my progress’ , but I will need to take monthly self administered iron injections . The long term plans have still not been decided . You will recall I have myeloma and have my own stem cells on ice in another local hospital , but was too poorly for a transplant last year . Covid in August also got in the way of earlier proposed treatment .
Generally , I am okay but I have had some bad days when I have felt awful …. I muse : they are killing the cancer cells but it sometimes feels like they are killing me …!!! I am not on any pain medication anymore - I was on fentanyl and morphine and paracetamol but stopped these by choice 2 months ago .
The awful icy numbing sensation in my toes I can’t stand . I fell in the fridge last week … and cut my finger as I toppled over /lost my balance . I have numbness/burning sensation around my bottom lip too which is as a result of medication . Food doesn’t taste the same and I put on a bit of weight which my consultants are not concerned about but of course I am …
A lot of people are praying for me and I also lay hands on my head and pray for myself . I speak to my bones and my blood cells.
Yesterday I felt okay and cleaned both the outside and inside lounge windows in the fresh March sunshine . I can’t wait for sunnier days but a word of warning : the sun and chemo don’t mix and I felt absolutely awful after sitting in my sisters window in the sunshine on Sunday .
I am not needing to sleep so much in the afternoon but I do go to bed to lay down and stretch out my bones with my hot water bottle on my feet. It is heaven.
I have noticed that sometimes I struggle with recalling a name but it is only momentary . I don’t know whether this is the chemo brain people have mentioned or simply because I just need to rest .
I am back in treatment tomorrow (Thursday ) and my time slot has been changed from 9:45 to 1pm. The treatment is for about 10 minutes so although I prefer a morning , I should get home before the 3:30 school crush.
My bathroom is scheduled for a refit next week . I am dreading it and having workmen in and out.
Take care everyone who chance to read my update .