Hi @John1 I definitely echo Erica’s words is so understandable to be feeling a whole range of different emotions, and it’s ok to feel scared. The most important thing is knowing you have support of us here within the forum community and of course the support line.
It’s so reassuring to hear you have support around you, do you find it helps to talk things through with your loved ones?
As Erica says, do let us know you get on with that phone call John.
@John1, so it was a double shock, when I was first diagnosed there was not a lot of reliable information out there and all I saw was that I had a prognosis of 5-10 years. I immediately wrote my will and music for my funeral and 16 years later I am still here. Treatments have moved on so, so much in those years. Does anyone else know those thoughts and feelings?
I will of course let u know on my phone call so anxious and scared they won’t have anything for me as I’ve already had the strongest treatment, good for u so good to hear your doing good after all these years, hope your right about the new medications and breakthrough that are happening all the time that gives me hope so thank u
Hi John, it’s sounds like a very emotional and scary time and I’m so glad you feel comfortable sharing with all of us. It sounds like you have a great support network which is so important. It’s good to hear clinical trials may me an option for you. Please let us know how you get on.
Thank u both to for your support
Feels good to reach out ,I will post on here tomorrow what they say thank u again
Just read thro your experiences John and just wanted to say I am thinking of you and sending all good wishes - let us know how you get on - as you see there is much support and empathy found here.
Really hope your phone call goes well today John.
Hi thank u both no phone call and been told without the trial nothing more can be done and only have a few months left
Oh, @John1, I just don’t know what to say, I cannot imagine how you are feeling at the moment and I know I have said it before that we are all here to support you and you can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday or via email at support@bloodcancer.org.uk if you need to. I am glad you have your parents, brothers, your girlfriend and friends for support, but I have found sometimes it is good to be able to say how it really is and feels to be you at the moment as perhaps we will understand as our loved ones cannot. It is easy for me to say but perhaps try and do some nice things and spoil yourself, oh, and keep posting, take care.
Hi Erica thank u for your kind words , I will ring that number soon thank u
I am so sorry to hear this news John and send thoughts and empathy - please keep posting here and use the helpline so you can support and advice as needed.
Thank u jilly , will keep posting u are are all so kind in here
Hi John, I’m just sending lots of love your way. Please take care of yourself. You know where we all are if you need us
Hi Nichola that’s very sweet thank u
@John1 I’m so sorry to hear this. I can only imagine what a worrying and uncertain time this must all be. Have they rearranged the call with you to talk things through including the possibility of the trial you spoke of? We’re all here for you John and have everything crossed for you.
Hi John. I have read through all the comments since you first posted. I am sorry that you have not had more positive news. You did not mention the type of lymphoma you have been diagnosed with. Have they said that they are unable to do a stem cell transplant? Are you being put on any kind of treatment plan?
It must be so difficult for you and your family going through all this during these strange times. As @Erica has said, spoil yourself, and think about making some special memories. Perhaps talk to your CNS or consultant about what they think you might be able to do. My best wishes go to you and your family
Hi to you both and thank u for your kind words, I have B cell lymphoma, I’m starting a trial drug next week, not gonna get over confident but it’s a hope still scared , had a lovely chat with su yesterday which was a wonderful help a really lovely lady
Hi John. I am so pleased you spoke to Su, and that it helped. Sometimes no matter how wonderful our families are we need someone who is away from the situation to toss thoughts about. It is difficult talking to family and seeing the hurt and upset in their faces, and trying to bouy them up (autocorrect thought I should put buy them up 
)
Being scared is natural, but keep hoping. Each time you have the drug believe this could be your miracle. Keep talking to us…we are always here
So glad you found your chat with Su helpful @John1. It’s so understandable you’re feeling scared, I can only imagine how much it must all be to process. We’ve got everything crossed that the trial drug works as well as it can for you John - please do feel free to get in touch with us at any point if you want to chat things through.