Hi @LH3 I’m so sorry to hear how tough and worrying things are for you at the moment. You sound like a great support for your mum. Yes if people have low levels of platelets they do have a higher chance of bleeding. It’s totally understandable that you have worries around this so I’d really encourage you to talk this through with her treatment team such as her clinical nurse specialist or her consultant if you have any questions or need any clarity. You mentioned that your mum may come to a decision on whether or not to continue with the transfusions. Did she manage to talk this through with her treatment team?
How are you feeling today and how is your mum?
Really glad to hear your workplace is so supportive.
Thank you so much for the support.
They have made another appointment for next Monday and if there is an emergency she can go in. The palliative consultant is amazing.
Hi @LH3 Your mum seems to be getting good care. Are you able to really talk your mum about her care and options or even to her team, although I realise ultimately all decisions are up to your mum?
Mum has good care which is being reassessed as it needs to be taken up x I am staying tonight to support dad. The Macmillian nurse came today and suggested I get signed off to help day.
We are here if you need us and if you need to talk you can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email at support@bloodcancer.org.uk. Take lots of care all of you.
Just wanted to thank everyone for their kind caring words over the past weeks.
Unfortunately Mum didn’t make her transfusion appointment on Monday and things have moved alot quicker than we thought.
She is now on the pathway and unresponsive x We are all around her.
It was lovely because last Wednesday I organised a family afternoon tea party with my brother and my kids and of course Mum and Dad. She gave us all early Christmas presents x
My heart is breaking and am finding it so hard x My children are being amazing and my mum would be so proud of them and
Oh, @LH3, I am so sad to hear about your Mum’s deterioration, I just cannot imagine what it is like for you all. I am glad you are all sitting around her, it really says something about you as a family.
Last Wednesday sounds a really lovely family afternoon tea party and what a clever, caring idea for her to give you all Christmas presents.
Your children do sound amazing and I personally think it is such a good idea for you all to be there together.
Yes, you must be finding it so, so hard and we are all here for you and you can contact the wonderful Blood Cancer UK Support Services Team on 0808 2080 888 10am-7pm Monday-Friday and 10am to 1pm Saturday and Sunday or via email at support@bloodcancer.org.uk to talk to someone.
Please try and take lots of care of yourselves and please keep posting.
Thank you so much xxx
My brother seems to be coping much better than myself. He is less emotional me how ever am the total opposite which I am finding extremely hard xxx
Hi @LH3. Gosh, this must be so so difficult for you all. How amazing that you had such a lovely day together but very sad for you all as well. You’re mum sounds amazing and loved so much by so many. So glad you have the support of your family as well. You will be in my thoughts. Please take care and look after yourself. As @Erica says, we are all here for you x
Thank you so much for the support and kind wishes x Unfortunately Mum passed at 7.30 Wednesday evening. I feel so guilty and sad I was at home feeding my rabble x Feeling heartbroken
Oh @LH3! My heart goes out to you and your family. I am so sorry for your loss and all the emotions you must be feeling. Thank you for sharing your journey with us and do continue to reach out if you find it helpful. Don’t forget you can also talk to someone at Blood Cancer UK. Thinking of you and sending warm wishes. Willow X
@LH3 We’re so very sorry to hear about your mum, we can only imagine what a difficult time this must be for you and your family- particularly with the added pressure of the current circumstances we’re in.
As the other lovely forum members have said, please do keep reaching out for support. Both the forum and support line are here for you. Lots of best wishes to your family, and we’re always here whenever you feel ready to talk.
I am sorry to read your news this morning. The forum family are always here for you. I am pleased that one of your last memories will be of your special tea party and early Christmas. Those presents will have extra significance and be especially treasured. Be kind to yourself, and do not feel guilty for being at home feeding your rabble, as your Mum would have wanted that. Although it may seem that the world has stopped turning, your rabble will be what gets you through this. xx
Oh, @LH3, my heart goes out to you and your family. It is so natural to have such a mixture of emotions and thoughts and even to go into practical mode, perhaps there is no right or wrong way to grieve. Also I found all family members grieve differently.
Perhaps you are going to need us even more now for support.
There is also a loosing someone to blood cancer category you might want to dip into.
Please look after yourself, perhaps you need all your strength at this time.
Hi @LH3. I don’t think anybody In your situation would be feeling strong at the moment. It’s been such an intense few weeks and loosing somebody is so hard. Why don’t you give our support line a ring. I think it would really help and they may be able to point you in the right direction of other support services. It’s open from 10-7pm today 0808 2080 888. Keep sharing with us as well X
Hi @LH3, I expect your feelings do feel completely overwhelming, don’t forget your mum had been there all your life.
As we are all saying we are here to support you and you have our support lines number.
How is your relationship with the rest of your family and don’t forget you will probably all grieve differently?
Take care of yourself ad keep posting.
and am finding it so hard x My children are being amazing and my mum would be so proud of them and 