I’m feeling incredibly lost, frustrated and very scared. I have so many thoughts and questions going around my mind.
After several infections between January and may my GP ran a full blood screen. I explained that I had been feeling extremely tired for months and that my other symptoms included pins and needles in my hands and feet, excessive sweating, itching and skin sensitivity after showering, joint pains and visual blurring with fatigue.
She called a few days after and said that my HB, RBC and HTC were high but she only seem concerned about the HBA1C levels of 50 and stated that I had type 2 diabetes and that she wanted to recheck my bloods again after a month. I had the second set of bloods taken at the end of July and there had been no changes so she started me on metformin and referred me to the diabetes nurse. Mid August I developed sudden abdominal bloating( waist size increased by 9 inches) and pain after eating her advice was to increase my omeprazole to 20mg twice a day. After 2 weeks there was still no change. I spoke with a different dr who agreed to request a CT scan which was inconclusive.
Afrer 7 weeks has nothing has changed at all.
Early hours of Tuesday morning I was woken by several chest pain and called 999 and was taken to A&E. There were no ECG changes and no evidence of cardiac damage in the blood results, however I was advised that my Lymphocyte level is >6 and that the abdominal distension and pain would be a confirmation of lymphocytosis and I should request that my GP referred me to a haematologist.
I spoke with my GP today and pretty much had to beg her to do the referral and she even said that it was unlikely that it would be accepted as I was not symptomatic. I then had to reiterate the symptoms I have been experiencing for the last 9 months and she denied any knowledge of these. Finally she agreed but under duress. I discovered a slight swelling in my arm pit during showering this morning. Which was the only reason she finally agreed but kept saying that It is mostly likely due to a long term viral infection. I explained to her that I have looked into the possible causes of lymphocytosis and the list of viruses stated are incredibly unlikely ( HIV/AIDS, Hepatitis A,B or C, CMV and Glandular fever) however the list states that the most common cause is Acute/ Chronic Lymphatic Leukaemia
Its obvious that I am not being listened to and I am being made to feel that I am a hypochondriac. Please has anyone else here had a similar experience can you offer any advice.
I’m 48 years old.