I’ve been having persistent elevated WBCs, Neutrophils and Lymphocytes for about 7 months now. There was one time where Lymphocytes dropped within normal range. I have no symptoms except for bloating and sometimes swollen painless submandibular lymph nodes. I also had a drop in haemoglobin, rbc and haematocrit twice but they magically picked up again within their normal range. I am waiting for a flow cytometry test and I am very confused, because when I google blood cancers I cannot find one which usually has both lymphocytosis and neutrophilia together. Any comments would be really appreciated.
Good evening @Xer and welcome to the forum. I can imagine the fluctuation in results can make you quite anxious. Are you under the care of your GP or do you have a consultant? I wondered what their feedback had been? Your questions are not ones I can answer but I have copied in the @BloodCancerUK_Nurses as they may be able to help
Thank you for that. I have been referred to Haematology by my Endocrinologist since I have also been recently diagnosed with diabetes and all this started through a routine check up. Kept repeating CBC to monitor the WBCs but all 3 remained elevated.
Hi @Xer a great big welcome and I am so glad that you have found us.
Unfortunately we cannot give you a diagnosis, that has to come from a medical expert.
They will take a lot of different aspects into account including any symptoms you might have, other conditions and medications etc.
We are all very special unique beings.
If you have any questions I find it helps to write them down and the replies you get.
Please let us know how you get on and look after yourself the waiting and not knowing are really horrible
Thank you for your kind words. I know that you cannot diagnose, but was hoping for someone who might had similar results? Guess I am being a bit paranoid about jt all. Yes, the waiting is terrible.
Hi @Xer you are definitely not being paranoid at all, as you say the waiting is terrible and I know my mind goes off in all directions at such times (and others!!).
Be kind to yourself, have you support from any family and friends? I find they are my best diversion tactics for the mind.
Yes thank you but I try not to worry them much until I have a diagnosis. Google is my closest friend at the moment.
Welcome to the forum. I am sorry to read that you have worries over your blood counts, and are trying to find more information on these.
Blood counts, as well as symptoms are taken into consideration when making any sort of diagnosis. This can be very difficult when trying to work out what your counts and symptoms may mean (Try not to use google for this, as everyone is so unique).
A diagnosis or disease is not just black and white, some people will have some symptoms or none at all. Some people may have stable blood counts, but their genetics tell a different story. As well as blood counts and symptoms, other health conditions need to be factored in to a diagnosis, as sometimes these can ‘mask’ symptoms or cause blood cell count changes, that may not be described or easy to find, especially if you are researching yourself.
Each of the specialist disciplines you are under will be best placed to inform you on why your counts keep changing - however, diabetes is linked to increased white blood cell counts (until the diabetes is under control). May I ask, have you started treatment for diabetes yet? If so, it may explain why your counts are ‘normal’ now. I do have a research article I can share (if it would help), but basically the conclusion states: “Results of our study showed there is a significant association between WBC count and diabetes”.
An increase is caused by the inflammatory pathways of diabetes, so white blood cell counts rise, in response to the inflammation. Your RBC, Hb, and HCT are all linked; red blood cell production is affected by the kidneys, diabetes can cause kidney damage and therefore low red cell production (anaemia). This could have been the case for you, before your doctor was aware you had diabetes. It is reassuring to know that your counts have since improved though. Is your diabetes stable now?
Easier said than done, but try not to worry too much. You’re ‘in the system’, will be seen soon and hopefully you will get a proper explanation of your counts and some reassurance.
Best wishes, Heidi.
Thank you @Heidi_BloodCancerUK . I am so grateful to have found you people replying to my concerns. I really appreciate you taking your time. My diabetes is well controlled now with treatment and diet, but my WBC, Neutrophils and Lymphocytes are still high, slightly increased on my last CBC. Urine samples show no UTI and ACR test came back normal too. I would love to read the article if you have it online please.