When I heard from Bloodwise that the 1st vaccination was not very effective for people with blood cancer and they should have a second vaccination earlier than 12 weeks I rang my GP’s surgery ,and explained and was rung back & told my husband and I had an appointment in 2 days time! This was despite the surgery website saying mot to ring for virus appointments. I think it worth trying this if you’re having to wait 12 weeks for your 2nd jab. I waited about 8 weeks in the end.
Hi @GardenerGran, thanks for your information it is really useful.
We are lucky to have Blood Cancer UK campaigning and informing us.
I hope you and your husband have managed in lockdown and are keeping well.
That’s interesting news. It seems to be a different story depending on where you live as I know others have been told the opposite but it makes sense to prioritise people like us. Thankfully my second dose is coming up this week so I’m not going to force the issue.
I belong to a local myeloma group. Many members have been offered early second vaccines due to the now known lack of effectiveness of the first vaccine for those of us with blood cancers. Mine wasn’t until the end of the month so I contacted the pharmacy where I’d had my first vaccine who said that they could only prioritise me for the second vaccine with my GPs authorisation. The GP surgery told me that the practice is refusing to have anything to do with the vaccination programme “otherwise that’s all they would do” but said that i could ring 119 to get mine brought forward. When I rang 119, the govt site, I was told that they would have to cancel my second vaccine appt before rescheduling it, so I agreed to this. They then said that the only vaccination centres available to me were at least 45 miles away in London ( the other was 2 miles away), and only a day before my original one had been scheduled. I cannot face driving into London to somewhere where I don’t know where to park when I am vulnerable to Covid-19, so i haven’t now got a 2ndvaccine booked at all. I contacted the pharmacy vaccine centre again, they say they don’t anticipate being able to fit me in as they have 60 people waiting for failed appointment slots which may take until late May to fulfill. I’ve been back on the govt website numerous times but no nearer venues have come up. This scenario has really knocked me for six. I think of myself as pretty resilient, but it makes me tearful even thinking about it. I have emailed my nurse specialist, but don’t know what else I can do. Any advice?
Oh @Maple, I certainly know the not being able to take any more hassle and bursting into tears.
I can give you no helpful advice, but just feel for you.
I have heard trying to book appointments through 119 often brings about the situation of being offered appointments with the hubs miles away.
I think you have got into a really horrible, wearing roller coaster situation.
I really, really hope your nurse specialist can be of assistance.
Please let us know how you get on @Maple.
Has anyone else got any handy hints?
Hi, I just read this and decided to give a ring for my GP. My 2nd jab is now booked for Saturday! I just wish that it would be as easy for all of us. I hope you get yours sorted asap @Maple.
Thank you Blood Cancer UK team…
After the last webinar where the consultants said that they had been writing to some of their patients GP’s to request a 2nd jab, I contacted our surgery the next day and was able to organise my husbands 2nd vaccine which meant that he only had a 6 week gap (which is pretty close to the original trial recommendation).
I have also asked his Haematology team if he can be part of the research into the effacy of the Pfizer vaccine, after having a 2nd dose.
Your help with keeping the blood cancer community informed throughout the pandemic has been really invaluable and I am sure you have helped to keep everyone much safer than we would have been.
That’s really great news!
Great news @nottmac . I had my second dose this week too but it was with an 11 week gap for the Astra Zeneca one which may not be too much of a problem. Not doing too badly so guess I’ve survived the experience