Vaccine and leukaemia

Hi I don’t know if I read it correctly I was reading something about the vaccination for covid and people with leukaemia and I think that I read that even if you have the vaccine you are still 30% more likely to die if you have leukaemia does anybody notice is correct thank youPS I don’t I know if I’m on the correct page so if I’m not

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Hi @Bobby You can post wherever you like and I think we are all dealing with the unknown a bit.
I believe there is not a lot of testing data out there on the effectiveness of the vaccines on people with blood cancer currently.
I am going on the theory that any protection is better than none.
There is a lot of reliable, up to date information on the Blood Cancer UK website.
The main thing is that you take care and stay safe and keep posting.

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Hello @Bobby thank you for sharing your question around this on here. I hope you’re doing okay. May I ask if you remember where you read this information?

We know how important it is to better understand the effectiveness of vaccine is for blood cancer patients given the increased risk of severe consequences from coronavirus. We talk more about this in this blog here - How dangerous is Covid-19 for people with blood cancer? | Blood Cancer UK

We still don’t know the level of protection that people with blood cancer will get from the Covid vaccines, or how this might differ between blood cancers. As you’ll know, some people with blood cancer have a weaker immune system, meaning their immune response to the vaccine might not be as strong as in someone without blood cancer, but the vaccine could still offer a level of protection, and some protection is better than none.

Please be assured that there is research going on that is looking in to this, which we are closely monitoring. You’re welcome to read about what we know so far, here - Covid vaccine efficacy and blood cancer | Blood Cancer UK
Over the last few weeks, Blood Cancer UK has been working to create a Blood Cancer Vaccine Taskforce, comprising of leading researchers who will make sure that the research is funded and coordinated in a way that will gain the best understanding of how people with blood cancer respond to the vaccine and are protected against Covid.

If you want to talk this through at any point, we’re only a phone call away on 0808 2080 888.

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@Bobby @Alice_BloodCancerUK Well it looks like that the Pfizer vaccine is not very effective to people with blood cancers as reported in the last couple of hours Cancer patients 'less protected' after first jab - BBC News. I was definitely hoping that the immune response was better than this small research indicates. And I hope that the timeline would change for cancer patients.

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@MoMo, thanks for your concerns, as I said on your other post, the unknown is the dilemma isn’t it, watch this space to see what is advised.
Until then please keep posting how you are.

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But you are less likely to die if you’ve had the vaccine than if you had not

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It’s a very uncertain time @Bobby , especially for people like us. There seem to have been lots of studies going on and some of them contradict each other. Like others I’d suggest that it’s better to have some protection than none and we should all still have the vaccine. The studies are not exact and we still don’t fully understand the level of protection that we will get. Hope you’re feeling better about this now.

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Hi Franco thanks for your reply I have had the vaccination about 5 weeks ago now but I suppose in reality because I lost my wife nearly 3 years ago my sense of I don’t know confidence took a battery in and I’ll probably do worry too much about staying alive obviously because I’ve got a beautiful family still and you’re right it is better to have a small amount of protection than none it stops me dying from it I’m ok with that take care my friend and all the best

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Hello @MoMo, just wanted to share our blog on these research findings, in case you and others hadn’t seen it - https://bloodcancer.org.uk/news/does-this-new-study-mean-blood-cancer-patients-arent-protected-by-the-covid-vaccine/. As it explains in this blog, whilst the findings of this study might immediately seem alarming, it’s important to emphasise that it is far from the full picture and there continues to be a significant gap in our knowledge about how effective vaccines are in people with blood cancer.

There’s info on this page about the Blood Cancer Vaccine Task Force, which has been set up to to identify and address potential gaps in Covid-19 vaccine research for patients with blood cancer - The Blood Cancer UK Vaccine Task Force | Blood Cancer UK
As always, if anyone wants to talk this through or needs any support, we’re only at the end of the phone or email.

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@Alice_BloodCancerUK Hi Alice, thank you for this link re the recent study. I read it and if I understood correctly the t-cell response is hugely important. Is there any studies going on where those blood cancers are part of in which t-cells are the cause of blood cancer? As a chronic neutropenic with abnormal t-cell activity I’m keen to gain more information.
Also I heard on other group that cancer patients are prioritised for second jab quicker, do you know anything about this?

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Hi @MoMo, yes, these are definitely questions for @Alice_BloodCancerUK or @SuBloodcancerUK

Just thought I’d put the link to our next Ask the Experts event coming up, which is on Covid-19 Vaccinations and Research on Effectiveness

Also @MoMo, so sorry I missed your questions around this, I will get back to you with some info ASAP!

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Hi @Alice_BloodCancerUK no worries, I’m sure you are busy. I’m not sure if I’m able to attend the next webinar about vaccinations… so if my initial questions can be forwarded to the panel that would be lovely.

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Hi @MoMo thank you so much for getting back to us, we’ll pass on these questions to the event facilitator, and the event facilitator will put as many questions as possible to the panel :slight_smile: :+1:

Take care,
Su

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Just saw this on another site. It seems that we may have a chance to get our second jab sooner… New vaccine advice for adults living with adults who are immunosuppressed - GOV.UK

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Just posting our latest Q&A for anyone who didn’t manage to watch it but would like to -

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Hi @MoMo hope you’re doing okay! Regarding one of your past questions, we aren’t aware of people with other types of cancers being prioritised for their second dose quicker and there is no mention of this in the green book here - https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/961287/Greenbook_chapter_14a_v7_12Feb2021.pdf
As you may know, we have asked the JCVI to allow clinicians to have the option to shorten the dosage timings for individual patients where they see a need. We will of course update our community if anything changes on this issue.

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