Feeling alot better today…checked with 111 who said my experience was not unheard of and I had to complete a fiom for the yellow card mhra scheme with taking chemo
Hope everyone is ok staying safe…
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@SpaceAngel it’s so understandable you’re feeling like this.
In case it can be helpful at all, we have some support information around coping with the uncertainty around this, here. If you feel it’d be helpful, do feel free to give us a call to chat things through.
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Unfortunately I had a bit of a bad reaction to the vaccination and have ended up in hospital. My temperature started going up about 12 hours after the jab and I wasn’t able to get it down with paracetamol so I had to call the haematology helpline. I ended up being admitted on Wednesday afternoon. Fortunately IV paracetamol and an array of IV antibiotics has stabilised everything and I hope I’ll get home today. Had a good conversation with my consultant last night and he’s going to look at some things to do before the second vaccination to minimise any further negative reactions.
Overall, while the last few days have been a bit challenging all my support has fallen into place and I’ve been well looked after. Also, even if I had known this was going to happened before I had the vaccination, I would still have gone ahead and taken it and I will not hesitate about getting the second one. Getting Covid would be much worse.
All the best, Peter
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Hi @SpaceAngel. I think everything is so up and down at the moment which means our emotions are to. I completely understand your anxieties and concerns. Normality can still seen a long way off can’t it. I’m just hoping that this is all one step closer to ‘normality’. Keep posting and sharing and take care of yourself x
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@Roopy99 it’s so understandable this is getting you down - I can only imagine how much you must miss seeing him! It’s good to hear he’s had his first vaccine. As Erica has said, please do give our support line a call if you want to talk things through? Our number is 0808 2080 888.
We have some information here around the current guidance around shielding after having the vaccine and some support around coping with the uncertainties around this, here, just in case it’s helpful at all - https://bloodcancer.org.uk/support-for-you/coronavirus-covid-19/covid-vaccine-blood-cancer/when-stop-shielding/
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Sorry to hear this but pleasing to hear support around you all clicked into place to get a more positive outlook… hope your back home soon.
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Hi @Dyslexicprof I hope you got sent home after all and are feeling better. Best foot forward, we’re closer to normal now after our jabs and it’s worth putting up with any temporary unpleasantness to get our lives back finally. Good luck everyone!
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Hi @Franco
Sorry for the delay in replying. I got home on Saturday abs am much improved if still quite fatigued. Hopefully that should improve soon.
Hope all well with you.
All the best,
Peter
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@Dyslexicprof it’s so good to hear you’re back at home and that things have improved, this must be such a relief. Take care and do keep us posted on how you get on, and hope the fatigue gets better too!
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Hi like you I have had multiple relapse of my Smlz & after 6 different types of chemo then had a stem cell transplant .Advised by my haematologist to have the vaccine but not to expect to produce as many anti bodies ,but she felt any were better than none. Had my jab on 29th of January had not I’ll effects ,& hope to have an antibodies test to see if I had managed to produce any antibodies,I feel that this was the right way to go to not only to try to help myself but all my loved ones .Good luck with your jab keep positive.
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Hi @Thelimes, yes my philosophy is the same.
I had my pfizer vaccine at the same time as yours also with no side effects.
Take care and stay safe and please let us know how you get on.
I think so. Some protection is definitely better than none x
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Not been able to post here for a while…I’ve been in hospital …first time as had an anauerisym in my head and needed key hold surgery to sort it out. It’s been a long scary week… I will be forever grateful to the nhs the staff and surgeons who save lives every day … thank you …my goodness you deserve more than they are giving you in your wage rise . Now long road to nearly full health begins…
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Hi @Hmc63, I am so sorry you have been so unwell. It must’ve been such a frightening experience. I hope the surgery was successful? Are you at home now? I think we are so lucky the have the NHS, and yes, they deserve so much more! I hope you are taking care of yourself. Sending lots and lots of love and special wishes your way 
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Oh, @Hmc63, that must have been so scary for you.
I bet it has been a very long frightening wee and I bet you are worn out emotionally and physically.
Yes, now is the time to really look after yourself and give yourself time to recover.
Please keep posting how you are, we are here to support you and if you would like to speak to someone you can contact the Support Services Team on 0808 2080 888 (10am-7pm Monday-Friday, and 10am-1pm Saturday and Sunday) or via email at support@bloodcancer.org.uk.
Yes, aren’t the NHS wonderful, we are so lucky to have them.
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I can’t even imagine how you must have felt @Hmc63 . It must have been terrifying. I do hope your recovery is going well and that you’re able to update us as you get better.
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Just a reminder that tonight we are holding this Live Q&A -
Ask the Experts: COVID-19 Vaccinations & Managing the Uncertainty Ask the Experts: COVID-19 Vaccinations & Managing the Uncertainty
It will be recorded for those who are unable to watch it live! I’ll share the link of the recording on here tomorrow!
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Hi @Alice_BloodCancerUK . This was so useful in so many ways. I always watch again in case there are bits I missed. Thank you Blood Cancer Uk!
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Thanks …doing well…platelets have dropped to normal…so that’s some positive news
. Just taking things slowly and steadily…my friend has been every day since I came home…and has really helped…
My mum bless her is going for her 2nd covid jab Sunday and at 87 nearly is fitter than all of us…she’s enjoying having a bit more company now that we are in a bubble and she’s alot more lively.
Stay safe and thank you
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Recovery going well…platelets are low again at 340…I’m.feeling alot more upbeat ready to start living my life again.
Still getting help around the home and my garden is now sorted so.im happy …it’s been a shock…and a learning curve but taking things slowly . My friend has been a complete angel and neighbours really good…just heard nothing from.family at all. I’m.more sad for my mum . However I will only focus on positives now…
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