Blood Cancer UK Forum topics tagged mds-myelodysplastic-syndrome

Topic	Replies	Views	Activity
52 and recently diagnosed with higher risk MDS Recent diagnosis mds-myelodysplastic-syndrome	11	135	24 September 2026
MDS new diagnosis low risk Recent diagnosis mds-myelodysplastic-syndrome	12	211	22 September 2026
Newly diagnosed with MDS Recent diagnosis mds-myelodysplastic-syndrome	6	179	7 September 2026
MDS AND psoriatic Arthritis Living with and after blood cancer mds-myelodysplastic-syndrome	2	41	7 September 2026
Share your experience of being diagnosed and living with MDS Help shape our work mds-myelodysplastic-syndrome	0	28	28 August 2026
CMML - A rare diagnosis Recent diagnosis mds-myelodysplastic-syndrome , cmml-chronic-myelomonocytic-leukaemia , mpn-myeloproliferative-neoplasm	283	7644	27 August 2026
Hot weather and MDS General chat mds-myelodysplastic-syndrome	12	796	12 August 2026
MDS/MPN Overlap Question & Help Blood Cancer Heart to Heart mds-mpn-overlap , mds-myelodysplastic-syndrome	45	579	8 May 2026
A 36-year-old Mum diagnosed with high risk MDS Recent diagnosis mds-myelodysplastic-syndrome	7	239	20 April 2026
MDS Diagnosis - bone marrow failure - genetic? Caring for & supporting a loved one mds-myelodysplastic-syndrome	1	128	23 March 2026
Awaiting or considering or had a stem cell transplant, a place to share here Going through treatment myeloma , mds-myelodysplastic-syndrome , stem-cell-transplant	1445	20980	11 March 2026
Volunteer as an Blood Cancer UK Ambassador Updates and News from Blood Cancer UK finances-benefits-insurance , forum-news-announcements-feedback , aml-acute-myeloid-leukaemia , cmml-chronic-myelomonocytic-leukaemia , myeloma , carer , car-t-cell-therapy , newly-diagnosed , lgbtq , mds-myelodysplastic-syndrome	0	67	8 January 2026
CMML & MDS/ MPN Overlap Media Opportunity Help shape our work cmml-chronic-myelomonocytic-leukaemia , forum-news-announcements-feedback , mds-mpn-overlap , mpn-myeloproliferative-neoplasm , mds-myelodysplastic-syndrome	0	85	2 December 2025
MDS to AML Recent diagnosis aml-acute-myeloid-leukaemia , emotional-or-peer-support-wanted-or-offered , mds-myelodysplastic-syndrome , receiving-treatment	5	435	11 November 2025
Ask the Nurses - Managing fatigue General chat myeloma , fatigue-tiredness , mds-myelodysplastic-syndrome , medical-clinical-questions , mpn-myeloproliferative-neoplasm	55	2718	16 August 2025
Anyone got any insight about diagnosis in the presence of overlapping conditions? Recent diagnosis mds-myelodysplastic-syndrome	0	89	9 July 2025
Rare blood cancer diagnosis? Connect, support and share here Living with and after blood cancer lgll-large-granular-lymphocytic-leukaemia , hcl-hairy-cell-leukaemia , rare-type , acml-atypical-chronic-myeloid-leukaemia , mds-myelodysplastic-syndrome	13	748	29 June 2025
MDS - What happens Caring for & supporting a loved one mds-myelodysplastic-syndrome	3	342	5 June 2025
Blood Cancer UK Support Services Help shape our work emotional-or-peer-support-wanted-or-offered , myeloma , mgus-monoclonal-gammopathy-of-undetermined-significance , mds-myelodysplastic-syndrome , forum-news-announcements-feedback , mpn-myeloproliferative-neoplasm	0	2297	27 July 2018
Diary of a carer of someone with MDS Caring for & supporting a loved one mds-myelodysplastic-syndrome	1	176	20 January 2025
Diary of a carer of an MDS patient Caring for & supporting a loved one mds-myelodysplastic-syndrome	1	135	20 January 2025
MDS & MPN overlap Recent diagnosis mds-myelodysplastic-syndrome , mpn-myeloproliferative-neoplasm	7	820	15 December 2024
MDS: Chemo ad Bone Marrow Transfusion Recent diagnosis mds-myelodysplastic-syndrome	2	102	26 October 2024
Dad’s treatment is being withdrawn Living with and after blood cancer mds-myelodysplastic-syndrome , mpn-myeloproliferative-neoplasm	28	1985	5 September 2024
Dad diagnosed with MDS with 12% excess blasts - scared Caring for & supporting a loved one mds-myelodysplastic-syndrome	4	958	28 June 2024
General talk about my recent CMML diagnosis-especially advice on travel Recent diagnosis mds-myelodysplastic-syndrome , cmml-chronic-myelomonocytic-leukaemia , mpn-myeloproliferative-neoplasm	15	1570	15 May 2024
Chronic myelomonocytic leukaemia new diagnosis Recent diagnosis cmml-chronic-myelomonocytic-leukaemia , mds-myelodysplastic-syndrome , mpn-myeloproliferative-neoplasm	5	502	3 May 2024
What reality should I expect as my dad’s MDS declines? Caring for & supporting a loved one mds-myelodysplastic-syndrome	2	924	17 April 2024
MDS affecting healing Living with and after blood cancer mds-myelodysplastic-syndrome	5	430	14 April 2024
Friends after diagnosis Living with and after blood cancer myeloma , mds-myelodysplastic-syndrome , cmml-chronic-myelomonocytic-leukaemia , mpn-myeloproliferative-neoplasm	12	535	10 April 2024

52 and recently diagnosed with higher risk MDS

Recent diagnosis

mds-myelodysplastic-syndrome

11

135

24 September 2026

MDS new diagnosis low risk

Recent diagnosis

mds-myelodysplastic-syndrome

12

211

22 September 2026

Newly diagnosed with MDS

Recent diagnosis

mds-myelodysplastic-syndrome

6

179

7 September 2026

MDS AND psoriatic Arthritis

Living with and after blood cancer

mds-myelodysplastic-syndrome

2

41

7 September 2026

Share your experience of being diagnosed and living with MDS

Help shape our work

mds-myelodysplastic-syndrome

0

28

28 August 2026

CMML - A rare diagnosis

Recent diagnosis

mds-myelodysplastic-syndrome , cmml-chronic-myelomonocytic-leukaemia , mpn-myeloproliferative-neoplasm

283

7644

27 August 2026

Hot weather and MDS

General chat

mds-myelodysplastic-syndrome

12

796

12 August 2026

MDS/MPN Overlap Question & Help

Blood Cancer Heart to Heart

mds-mpn-overlap , mds-myelodysplastic-syndrome

45

579

8 May 2026

A 36-year-old Mum diagnosed with high risk MDS

Recent diagnosis

mds-myelodysplastic-syndrome

7

239

20 April 2026

MDS Diagnosis - bone marrow failure - genetic?

Caring for & supporting a loved one

mds-myelodysplastic-syndrome

1

128

23 March 2026

Awaiting or considering or had a stem cell transplant, a place to share here

Going through treatment

myeloma , mds-myelodysplastic-syndrome , stem-cell-transplant

1445

20980

11 March 2026

Volunteer as an Blood Cancer UK Ambassador

Updates and News from Blood Cancer UK

finances-benefits-insurance , forum-news-announcements-feedback , aml-acute-myeloid-leukaemia , cmml-chronic-myelomonocytic-leukaemia , myeloma , carer , car-t-cell-therapy , newly-diagnosed , lgbtq , mds-myelodysplastic-syndrome

0

67

8 January 2026

CMML & MDS/ MPN Overlap Media Opportunity

Help shape our work

cmml-chronic-myelomonocytic-leukaemia , forum-news-announcements-feedback , mds-mpn-overlap , mpn-myeloproliferative-neoplasm , mds-myelodysplastic-syndrome

0

85

2 December 2025

MDS to AML

Recent diagnosis

aml-acute-myeloid-leukaemia , emotional-or-peer-support-wanted-or-offered , mds-myelodysplastic-syndrome , receiving-treatment

5

435

11 November 2025

Ask the Nurses - Managing fatigue

General chat

myeloma , fatigue-tiredness , mds-myelodysplastic-syndrome , medical-clinical-questions , mpn-myeloproliferative-neoplasm

55

2718

16 August 2025

Anyone got any insight about diagnosis in the presence of overlapping conditions?

Recent diagnosis

mds-myelodysplastic-syndrome

0

89

9 July 2025

Rare blood cancer diagnosis? Connect, support and share here

Living with and after blood cancer

lgll-large-granular-lymphocytic-leukaemia , hcl-hairy-cell-leukaemia , rare-type , acml-atypical-chronic-myeloid-leukaemia , mds-myelodysplastic-syndrome